I ask myself the following Question. Do I ever stop ~ talking/thinking about the likelihood of the last problems with and delight of a shower? In all honesty, probably not. Obsessed much! That's MEcfs & spoonie life for you. Let's just say the subject of being able to have a shower is frequently on one's … Continue reading Sing-along-a-Shower-Day…
Before panic sets in for readers of a certain era, I’m not about to drift back to the days of East London and bust out an Ian Dury & the blockheads number! Talented but irreverent. Sigh of relief from those present. Hehehe. Reasons to be #Cheerful... As many of my readers know, I have been … Continue reading Reasons to be #Cheerful…
Hi! I've been quiet for quite a while I know. In a bid to recoup some energy I had to make some changes. For longer than anticipated! Taking a reluctant break from writing my blog was one of them. Before taking the hiatus, I penned this piece for The Unchargeables website. And I'm excited to … Continue reading I’ve been discussing Loneliness over at ‘The Unchargeables’
I'm the first to admit that the past few months have been a struggle, being on a setback plateau. Five months stuck at 'base camp', often 'bed camp'. A cosy place, but an occasional change of scenery is always welcome. But that has not been possible, and currently still isn't. Where ever I'm stuck, however, … Continue reading Help while stuck at ‘Base Camp’
How can this be? I will explain. It's all about the attitude I now have to my shower seat. It wasn't easy to begin with, but vastly improved following an unplanned run in with a bath bench. So, I'll begin. After a while of seriously struggling to shower. (It's still a serious struggle. But I'm … Continue reading My friend, the Shower Seat
This is the first time I have reblogged a post from another blogger. It’s such a poignant post, I had too.
Reblogged from Called to Watch.
My mum has a chronic illness. She’s been sick for as long as I can remember. Mum, this letter is for you.
Dear Parent with a chronic illness,
You don’t have to say it aloud. I’ve read it in your sighs, your looks, your actions.
The confession. The apology.
My sickness has damaged the happiness of my child.
I, who brought them into the world, who had all these plans, these hopes – have been able to do one percent of all I dreamed.
I wasn’t the one to bake with them, to take them to the beach, to bushwalk, to laugh – someone else did these things, and sometimes, no one did them.
Am I a failure?
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#WhatsYourWord ● Part 2 I hadn't realised how helpful #WhatsYourWord was going to be. Ongoing discussions and debates in the ME/cfs world, concerning *GET & *CBT and the damage it can cause, have very recently severely disrupted & challenged my peace. And it has caught me off guard. Having taken years to reach a point … Continue reading #WhatsYourWord ● Part 2