I'm the first to admit that the past few months have been a struggle, being on a setback plateau. Five months stuck at 'base camp', often 'bed camp'. A cosy place, but an occasional change of scenery is always welcome. But that has not been possible, and currently still isn't. Where ever I'm stuck, however, … Continue reading Help while stuck at ‘Base Camp’
How can this be? I will explain. It's all about the attitude I now have to my shower seat. It wasn't easy to begin with, but vastly improved following an unplanned run in with a bath bench. So, I'll begin. After a while of seriously struggling to shower. (It's still a serious struggle. But I'm … Continue reading My friend, the Shower Seat
This is the first time I have reblogged a post from another blogger. It’s such a poignant post, I had too.
Reblogged from Called to Watch.
My mum has a chronic illness. She’s been sick for as long as I can remember. Mum, this letter is for you.
Dear Parent with a chronic illness,
You don’t have to say it aloud. I’ve read it in your sighs, your looks, your actions.
The confession. The apology.
My sickness has damaged the happiness of my child.
I, who brought them into the world, who had all these plans, these hopes – have been able to do one percent of all I dreamed.
I wasn’t the one to bake with them, to take them to the beach, to bushwalk, to laugh – someone else did these things, and sometimes, no one did them.
Am I a failure?
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#WhatsYourWord ● Part 2 I hadn't realised how helpful #WhatsYourWord was going to be. Ongoing discussions and debates in the ME/cfs world, concerning *GET & *CBT and the damage it can cause, have very recently severely disrupted & challenged my peace. And it has caught me off guard. Having taken years to reach a point … Continue reading #WhatsYourWord ● Part 2
Hey! Do you have songs that just give you the edge? ... continuing a bit of theme here. Over the years of ME/cfs, many, many times I have relied on music to get me through. Both Worship & Secular music. And I still do. Particular songs may express how I'm feeling, when I can't put … Continue reading I’ll Name That Tuuune..?
I try to have a word for the New Year as I don't always find resolutions very realistic, well for me anyway. So... Prompted by the WP Daily Prompt, thank you. Encouraged by the post by Melanie at melaniespickett.com ~ 5 Ways to a Happy New Year. And the post by shepherdessfortheking.com ~ One Word for 2018. I settled on … Continue reading What’s Your Word? Part 1
Part I ~ For richer for poorer One of the many facets of Marriage within Chronic illness. During this year, with my husband, we celebrated 30 years of marriage. We didn't anticipate the limitations now ever-present, we hadn't even thought about that when we first married. We were young, naive, having fun (and learning about … Continue reading Marriage & Chronic illness…for richer, for poorer