I'm the first to admit that the past few months have been a struggle, being on a setback plateau. Five months stuck at 'base camp', often 'bed camp'. A cosy place, but an occasional change of scenery is always welcome. But that has not been possible, and currently still isn't. Where ever I'm stuck, however, … Continue reading Help while stuck at ‘Base Camp’
This is the first time I have reblogged a post from another blogger. It’s such a poignant post, I had too.
Reblogged from Called to Watch.
My mum has a chronic illness. She’s been sick for as long as I can remember. Mum, this letter is for you.
Dear Parent with a chronic illness,
You don’t have to say it aloud. I’ve read it in your sighs, your looks, your actions.
The confession. The apology.
My sickness has damaged the happiness of my child.
I, who brought them into the world, who had all these plans, these hopes – have been able to do one percent of all I dreamed.
I wasn’t the one to bake with them, to take them to the beach, to bushwalk, to laugh – someone else did these things, and sometimes, no one did them.
Am I a failure?
View original post 699 more words
#WhatsYourWord ● Part 2 I hadn't realised how helpful #WhatsYourWord was going to be. Ongoing discussions and debates in the ME/cfs world, concerning *GET & *CBT and the damage it can cause, have very recently severely disrupted & challenged my peace. And it has caught me off guard. Having taken years to reach a point … Continue reading #WhatsYourWord ● Part 2
Part I ~ For richer for poorer One of the many facets of Marriage within Chronic illness. During this year, with my husband, we celebrated 30 years of marriage. We didn't anticipate the limitations now ever-present, we hadn't even thought about that when we first married. We were young, naive, having fun (and learning about … Continue reading Marriage & Chronic illness…for richer, for poorer
Pacing ~ in theory, she laughed! Harsh words were spoken directly into my understairs cupboard this afternoon. Why? You may well ask. We've had rather unexpected snow here. And on sleepily glancing out to the garden, I saw the poor birdies as they pecked away at a frozen bird bath of sorts, the standby is … Continue reading Daily prompt ~ Theory
Cranberry seas & other mishaps Having ME/cfs can have the effect of making one incredibly clumsy. Walking into door frames, dropping things is not unusual. And as you may have read in an earlier post, Colour for the mind & magnet brakes , I once crashed into a Cotoneaster on a rare scooter outing. There's nothing … Continue reading Daily Prompt ~ Relocate ~ Cranberry seas & other mishaps
A fairly recent, very light-hearted, conversation prompted a thought. And as my readers will know, that's not unusual for me. The conversation... I had been chatting with one of my children & reflecting on their recent visit to Tate Modern in London. (No, I still haven't reached the dizzy heights of London.) We discussed our … Continue reading Is Chronic illness Live Art..?